Jeff,

I now take 60mg of Baclofen for the spasms, 30mg of Valium to keep me "calm" so that I don't have the reactions to outside stimuli that SPS causes, 450mg of Imuran (Azathioprine) to help control my immune system which is for both MG and SPS, and Prednisone - alternate 20mg one day/5mg next day. I cannot take Mestinon since the one time they gave it to me thankfully I was still in the hospital and it sent me to critical care ICU for a week on a respirator and close to congestive heart faillure.

I have read another post on this site that said that if you can't tolerate Mestinon it probably means that you don't have MG. Don't know that for sure.

My main focus is the SPS and trying to control the spasms. I still get really stiff especially my neck and back and have to lay down every afternoon to rest for several hours.

Hope this helps you.

Becky
Southern Bell