Welcome to this site! It sounds like you truly need a better doctor who will deal with RSD issues, but that is easier said than done. The best information I can offer is to research all you can. There are so many links here. I have just recently files for disability, but am waiting for their big NO! But, we need to stick together, fight, research and eventually get results. Pain is so hard when it's 24/7. Hang in there!