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Member
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Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
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Member
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
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Hiya,
Have you done a poor mans tilt table test? Instructions can be found on Dinet - bit long winded to go through here. Dinet will also be able to give you advice about NCS etc its a great place for support. (as is this forum)
When the double vision is bad I just have to lie down in a dark room for 30-60mins and close my eyes to rest them. I find that really helps. If its not too bad and I know which image is the correct one I try and struggle on the best I can.
Sorry I cant be of more help.
Rach
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Diagnosed with:
Postural Orthostatic Tachycardia Syndrome,Post Prandial Hypotension, Orthostatic Intolerance, Arrythmia, unstable blood pressure, severe autonomic nervous system dysfunction ,Ehlers Danlos Syndrome Type 3,Gastroparesis,IBS,Hidradenitis supprativa
And Myasthenia is still a possible diagnosis depending on which Dr I see.
My blog address is
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Lord, grant me the serenity to acceptThe things I cannot change,The courage to change The things I can,
And the wisdom to hideThe bodies of Doctors I shot
When they said,"You're perfectly healthy,
It's All In Your Head."
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