Thanks ginnie. Doctors are not agreeing at all right now. My vascular surgeon wants me to have breast reduction in hopes of calming the strain on the TOS area. My neurologist says no way with RSD in the picture. My neurologist, vascular surgeon, doctor who did the EMG and a hand surgeon I consulted for possible carpal tunnel all independently stated I had RSD symptoms on the TOS side. My primary doctor is not certain it is RSD because I do not guard it in any way. He thinks it is pain from TOS.

At times it feels like RSD except I can touch my arm and neck and in fact touching feels good. It distracts me from the pain. That was not the case on the left side. I could not even let a shirt touch that side for over a year. So I don't know. Just in lots of pain and very little sleep. I just have not seen anyone write that their TOS side gets warm. My hand will get so much hotter than my left side, it is weird, which is typical for RSD.