Quote:
Originally Posted by Sheltiemom18
en bloc's reply above is absolutely correct.
I also have Sjogren's, and it was actually the neuropathy caused by Sjogren's that was diagnosed first - burning small fiber, non-length dependent. Although greatly improved and being here for almost two years now, the neuropathy is unlikely to go away completely, and for sure the Sjogren's never will. The neuropathy improved w/o Rx meds but with the use of certain supplements (NOT herbals!).
I've some cranial neuropathy as well as autonomic nervous system problems; however, nothing to the point of incapacitation. The first eleven months were the worst. This second year has been a lot better (keeping fingers crossed).
Best,
Sheltiemom
|
Hi, it's my understanding that Sjogrens never goes away. We just manage it with Meds . There is primary and secondary Sjogrens, as yorobably know. I have secondary Sjogrens with the mixed connective tissue disease I Have. I recently started getting the burning sensation in my hands and feel. Probably small fiber stuff. My neuro ws taking to me today that it might be from vitamin deficiency. I did get a b1 shot today. More blood work to come!
