I'm at 16 months post accident and still struggling. My first neuro was completely clueless. Fortunately, I was able to finally find a team of doctors who get it. Kelly, I hope what you have recently found out and your drs can finally help you find some relief and feel more supported. My advice for those of you who aren't getting help from your doctors is to try another. I know it's a huge pain to do that, but there is more than can be done in terms of medication and therapies that may be of benefit to you. After more than a year of this, and realizing most people don't get it, I've decided that if you don't want to take the time to understand my struggle, I'll move on to someone who does. Thankfully, this meant finding new doctors.

As for returning to work, I'm worried I will have to try to find something soon, as I have another 16 months of waiting for a disability hearing, and can't pay my bills..... I just don't know what else to do. My employer treated me the same way at 3 months out from my injury and fired me when I was unable to return to work. (I was not FMLA eligible because I had only been with the company 11 and a half months when the accident happened.)

I agree, thank God for this site. Just know that there are others who have been in your shoes and are sending positive vibes your way. Keep pluggin away. We're here for you