NCRN,

First off....welcome. I read one of your responses (about IVIG rates etc.) and was impressed. I'd like to pick your brain on IVIG.

I have had my MG dx now for about 3 years - and searched for that dx for about two years before that. I would describe myself as a 'stable' MG'r - if there is such a thing, and have only ever used generic Mestinon for treatment. My neuro has offered pred and Imuran to attempt remission, but I have refused both. IVIG has never been considered, though it has been mentioned as something that would have to be done if I ever crashed.

I consider my quality of life to be acceptable with the 180 - 240mg of Mestinon each day. I'm kind of funny when it comes to serious medicines and therapies (like pred, Imuran and the others, IVIG, plasmaperesis) and prefer to avoid them until unless I can be convinced that they are absolutely necessary.

Do you think I am limiting my improvement because I only take Mestinon?