Hello Jenno-
I know you posted quite a long time ago and am hoping you are still active. I'm wondering if you had personal experience with Dr. Sherry's program in Philadelphia. I am considering it after having a good, but not great experience for my daughter at Mayo in Minnesota. Since you have been dealing with this for so long (we have only been at it 8 months), I would be so thankful for any insight you would have.
Lori
Quote:
Originally Posted by jenno
RSD and RND are the same thing. I am guessing that your daughter received her diagnosis from Dr. Sherry, as that is what he calls it. My 17-year-old daughter was diagnosed 3-1/2 years ago, and I would be happy to share what we have learned along the way. You can send me a private message if you prefer to correspond that way. Wishing you and your daughter the very best!
Jeanne
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