Quote:
Originally Posted by bu452000
Hi Lisa,
Sorry you are having such a hard time and feeling so poorly. There are many more treatments besides pyridosigmine (mestinon). When I was in bad shape they put me on prednisone which straightened me out a bit but had many side effects. Currently all I take is mestinon and just deal with the daily weakness and other symptoms. Many take either cellcept or imuran and there is IVIG therapy. Read some of the other threads on this site and you will find a lot of info. Talk to your nuero about all of these options and find out which is best for you. Hoping you feel better.
Al
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I found out that Monday I have a functional capacity evaluation scheduled by ssi. I really hope that alone doesn't determine if I am disabled. Has anyone with myasthenia had a test like that before?
As for medications, my family has a history of heart problems so any type of steroids is a big, no no.
thanks, i will def. talk to my nuero about options.