Quote:
Originally Posted by r0xmyface0ff
I'm considering seeing a specialist at the hospital about this condition, but since I don't have insurance I want to see if my symptoms relate to anyone else's before I spend the money I don't have to see the doctor.
Here's what I have going on, and have had for about two years now:
Burning, relentless aching on the right side of my head just before my ear, running vertically along my head. The pain seems to radiate from this point and, in turn, causes stabbing, tingling, and aching in my right cheek, nasal cavity, and upper & lower jaw. I also get aching and burning in my frontal and rear temporal muscles. The pain last for 10-14 hours at a time and no medications (OTC) seem to help at all. There don't seem to be any specific triggers, and only rarely do I find these areas sensitive to touch. It's just non-stop ongoing terribly boring pain.
I've attached an image that indicates my pain.
Pink means aching, and a less severity while red means intense deep burning and high level of severity.
Please, any information will help; I don't know what to do and I can't keep dealing with this as it stands.
Thank you!
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Not very good news to report. After finally seeing someone who knows a great deal about TN I've been told I should have never been a candidate for surgery. So in a way I'm told I'm lucky because I never had the MVD. The doc was baffled as to why the right side has become numb and thought of MS or fibromyalgia, although no signs of MS on last years MRI. Overall I’m more in the trigeminal neuropathy or atypical facial pain class and there isn’t much the doctors can do. An option is to seek treatment at a Pain Management Center. I’m sorry there isn’t much else to say, I was hoping on surgery to solve my problems so now I’m depressed. For those of you new to the site check out John Hopkins website and go to the Trigeminal Neuralgia Center page to get some information and view videos, including an hour long seminar by Dr. Lim on trigeminal neuralgia which at points touches the atypical pain as well. Dr. Lim does not recommend surgical procedures on most atypical patients that don’t have the symptoms of classic TN like the electric/stabbing episodic jolts.