I also had a clot develop due to my TOS. I was actually told that the clot was caused due to compression of my sub clavian vein. I had the surgery June 19th at Barnes Jewish Hospital in St.Louis through The Center For Thoracic Outlet Syndrome. Dr. Robert Thompson. They removed the scalene muscles and first rib. I had a MR venogram that confirmed compression. Im still healing, and doing better every day. I was lucky enough that no vein reconstruction was needed. I was injured a year ago. Was diagnosed TOS almost 6 months later. Tried PT but nothing helped. I had surgery 1yr 4 months after my injury. The key is finding the right Dr's and be persistent. Good luck to you.