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Old 07-14-2012, 08:30 AM
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Dejibo Dejibo is offline
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Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
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Hello and welcome. I am soooo sorry that you are struggling and the medical community hasnt been able to give you real answers, or real support.

Is there an MS center near you? these folks are expert at sorting out what is what and what isnt what. many of us go, even if we have to travel and get our dx and then we use a local neuro for follow up care. Your problems sound multi level and you may need multi level care.

Let me warn you in advance, there are more than 100 diseases that can mimic MS including the brain lesions. Your MD will take that 100 (its actually more like 400) and start ruling out the easy ones. Vit D or B12 def or other vit stuff. Red cells, white cells, plasma counts, thyroid levels adrenal levels...once they move past those they start looking at things like Lyme, lupus, Sjoghrens, and so on. Once they get to the lower end, they start looking at migraines, visual or optical migraines and the like. Finally they will move into the "cant prove or disprove" them catagory. There are a handful of disease that cannot be proven till autopsy and since we dont want one of those just yet its a guessing game as to which of these diseases fit YOUR pattern. Everything from where your lesions live to how often you have a head. they take all into account. Then when they think you are IN a flair (you rarely gain any answers when not in a flair) they will do a spinal tap. If there is inflammation in your brain, it will show up as O bands in your spinal fluid.

There is something called CIS or clinically isolated syndrome. This means you have a lot of symptoms that could fit in one or the other catagory but they cant place you there just yet. Some folks end up on treatment anyway, and some folks are told they have to wait for their disease to turn the corner and identify itself.

I wish you the best of luck. let us know how it goes. As for your tootsies it could be a potassium def. or you could drink tonic water at night for the quinine which is well known to help muscle cramping.
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offinthedistance (07-15-2012), SallyC (07-14-2012)