My mother had MDS. You need an oncologist asap. MDS is a cancer, its cancer of the blood. Early onset is best. This can be cured, but you need the right doctor. Second opinions are always a great idea. We did 3 opinions for my mother. If I remember correctly, the only cure is a bone marrow transplant, but it is age sensitive. She was 64 at the time, and considered to old for the procedure. Good luck to you and God speed.