I'm not sure (hard to believe, since I've read a lot) whether MDS is related to Myeloproliferative, which I have in addition to an MS dx and Porphyria. I have had Polycythemia Vera ( a myeloproliferative disorder) for about 7 years. I have phlebotomies for reducing red cells, and had p32 (Radioactive Phosphorus) at Mayo Scottsdale in March, which reduced platelets to almost normal.
I have been to Hopkins as well, years ago, and they certainly are a good place to go, as Marlene suggests. But they were not "up" on the use of p32--I've called my doctor there, and they do not use it.
So I would also recommend Mayo Clinic for your disease. You are closer to Mayo Rochester than to Mayo Scottsdale.
When I first got VP (my myeloproliferative disease) I was told it was not cancer, but since then the World Health Org. reclassified it as cancer. the cells are not malignant, but proliferate too much. As I say, do not know if that is related to what you have.
And as KittyLady said, "God speed."