You don't mention medications so all I can pass on to you is my own experience . I also had trouble walking any kind of distance . After a long period of testing I was finally diagnosed with LEMS . I was presribed an experimental medicine , diaminopyridine and later mestinon . I have been able to build up my endurance with stationary bike work , low speed treadmill and later some weight work . If you live in an urban area try to find a Y.
I wish you luck in your search , I know how frustrating in can be finding answers.
jim
Quote:
Originally Posted by NewlifeS
Hi Im new to the forum and found it because both me and my husband need some help with understanding my Myasthenia Gravis condition better and get ways to help improve my lifestyle and health and wellbeing.
I have had myasthenia for a long time now and was diagnosed with it at 8 years old. I'm now in my late twenties. I have used quite a few different medications over the years and am looking for adivse on how best to help myself further.
I would like to help improve my health and exercise but I know that even walking a few blocks can tire me out, so wanted to know what kinds of exercises other people with mystenia do to help keep them healthy and trim.
I also wanted to know if there is any diet advice that I could follow so that it goes well with my excercise or something that would give me more energy and less fatigue.
I hope someone can help with any information.
Sorry about any bad english or grammar, typing on a phone isnt great.
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