I wish I could help.

For me this disease is about the little things. It's about finding all the triggers and avoiding them as well as finding the things that help and using them as much as tolerated. Ghinko biloba and warm water help so I take 180mg of GB per day and try to keep my hand in a warm bath 45 minutes a day. Mostly it seems to be about distracting myself from the pain.

Sleep is exceedingly important to most of us as we tend to improve in our sleep. I'd talk to the doc about finding something, anything, to improve sleep. I have to take tizanidine to suppress a hardly noticeable tremor that keeps me awake as well as other meds to help sleep. If you're taking anything that tends to keep you awake see if you can take it in the morning instead.

Getting the meds right is job one. I hope you can find something easier to deal with. I often think along the same lines; that ultimately my choices will be exhausted but in the meantime I plan to fight this sucker with everything and see if a more natural death is possible.