Hi Lori,

My daughter had great success with Cleveland Clinic Pain program. I highly recommend the program. There is a Ronald McDonald house that you can stay. I believe I paid $40.00 per week. Wonderful families. If you need a link or contact information I can help.

There is a light at the end of the tunnel. Possible remission etc. The quicker you get your child into a program that can help them manage their pain the better off they will be as they mature.

I am so sorry this has afflicted your child it is a horrible thing to watch them suffer day in and day out, not knowing how to help them. They just don't understand why this is happening to them. You are in my prayers.

Sandy