Originally Posted by Dejibo

most folks with diabetes have high blood sugars. are yours raised? Peripheral neuropathy can be so painful, but it can come with so many conditions. MG, MS, Lupus, lyme...the list goes on and on.

From the tone of your post (dear god its hard to tell intent, tone and humor in posts) it appears as if you think he wasnt listening, and maybe was a bit dismissive. If this is the case RUN to the next neuro. I saw one neuro who said "youre too old to have MS" I said "not if I have had it for years and no one caught it!" He didnt have an answer for that. He went on to say "still dont think you have it." went to the MS center who said "oh yeah! you have MS" They felt it so strongly I got to skip the spinal tap. So, if you are not syncing with this one, get a new one.

YES! we frequently have multiple issues. I have a brain tumor, sjoghrens, arthritis, and migraines. It seems that if you have one auto immune disorder your body tends to allow others in the door more easily.

Best advice is to clean up your diet (i have no idea what you eat now) but to clean out the processed foods, over salted, over manipulated stuff, and try to get wiggling. Even if its chair exercises. It helps burn off that cortisol that comes from having a stressful disease. Whether that is MS or diabetes or porphyritic stuff. (thought of you mariel)

Do you think you want to see another neuro? or were you happy with the answers this one gave you? Many of us go thru several before we find someone to listen to what we are saying. you say "my feet are burning!" they say "wear lighter socks!" you say "im off balance" they say "get up slower" its like...DUDE! thats not an answer its dismissive!