QUOTE: "Oh and I just remembered I don't have another appt with him until NOV oh and he told me to go back to my old neuro"

Hello Shadiyah,

It really does sound like he does not want you as a patient. It might be best to take his advice and go back to your old neuro or find another one. Your test results and symptoms should not be ignored but rather should be taken very seriously...and hopefully with some genuine concern and compassion.

Sometimes these super specialized neuros are into research and they are picking and choosing their patients so that they can put them into their research program (drugs). They really get ticked if you don't take the meds that they recommend. I had that experience once. He seemed like a really nice and caring person, and had all the time in the world during the first visit. On the second visit he had some results (similar to yours), and said that he wanted me on a particular medication protocol that included steroids. When I said that I couldn't take that due to enteritis and liver compromise, he said pretty much the same thing that yours did. "Well, then I suggest that you deal with your family physician to control symptoms as there is nothing that I can do for you."

Most importantly don't give up. There are still compassionate, genuine and knowledgeable neuros out there. Keep looking and never doubt yourself or that your symptoms are very real. It does seem that we sometimes need to prove to physicians and others that there are impairments. That is just the way that it is because many of our symptoms do no show. Hang in there and look after yourself as best you can. Cut back on that chocolate, OK?

With love, Erika