Originally Posted by belichkah

do you yourself have pelvic rsd? I would love to know more about your struggle with it if that is the case i have not met anyone else with pelvic rsd[/QUOTrecurs

Yes I have had pelvic perianal vaginal rectal rsd for five years.
Spread to digestive system. Now full body. Just finally diagnoised. I can not even use the bathroom all is closing up descending swollen atrophied tight prolapsing....on top of all my other issues.

Please...I am confused as to who helps patients with pelvic crps. I am in big trouble. Water burns. Using bathrom rips me apart... I am unable to stand wk sit it is horrid... My pelvis is twisted and hard as a rock.... As is the ret of me.

Please...could someone list doctors that help with pelvic crps. My perinum. Has descended below my **** opening which is prolapsing with painful tissue swelling all my tissues are hard and red and shrinking and do painful.


Everyone is speaking if doctors in az? Could anyone please assist me with finding a crps pelvic perianal specialist. I've been searching and calling to no avail

Anyone can pm me and we can talk-even by phone
Love to all