Quote:
Originally Posted by Buffy1
I suffer from sever trigeminal neuropathy on the left side of the face; Dosage of Neurontin at 1200 mg per day takes away some of the pain, but not the severest pain between the mouth and lip which makes it increasingly difficult to talk during the day. Alll suggestions are welcome. Has anyone had botox injections for trigeminal neurpathy? The face is throbbing as I write and thanks to all for any help. I am at my wit's end and do not know what to do. More Neurontin is an option but as it hasn't doesn't anything for the severest pain I doubt that more if the sale will do. Best to all, Buffy
|
My mother experienced this several years ago to the point they were keeping her drugged in order to get any relief. Could not eat - brushing her teeth would set the shocks off - hot cold food - fan blowing on her face etc. I found a specialist that performed surgery - with the target of installing a pad around the nerve - behind the ear. During surgery they found a small vein wrapped around the nerve and clipped it away. This along with a glycerol injection in the nerve; plus very LOW dosage of a Neurontin generic drug has made her life worth living again. She was at the point --------- she did not want to continue. IN the last 4-5 years she has lived a comfortable life with min / very minor pain from time to time.
