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Old 07-20-2012, 12:41 AM
rachel's daugther rachel's daugther is offline
Junior Member
 
Join Date: Jun 2010
Location: Chicago
Posts: 54
10 yr Member
rachel's daugther rachel's daugther is offline
Junior Member
 
Join Date: Jun 2010
Location: Chicago
Posts: 54
10 yr Member
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My daughter has been to the Boston Clinic twice. The first time when she was 16 and the RSD was in her lower left leg. One year later RSD mirrored to her right leg and she was in a wheelchair for 5 months before we went back for the second time. She came home till in pain but out of the wheelchair. I would recommend this program for any child. Your daughter will meet other kids she can really relate too, Maddy still keeps in touch with her PPRC friends. Good Luck.

FYI, we tried to go to the Cleveland Clinic the second time because closer to home and hotel fees cheaper. We were denied by insurance because it is considered in-patient as Boston is considered out-patient. 3 insurance appeals and a visit to Cleveland for them to submit to insurance was taking just to long (3 months) called Boston and was able to get in 2 weeks later. The first week we were there our insurance granted Cleveland Clinic, just too late.

Both programs are great, I just felt the in patient would have helped my daughter manage/cope with her pain better. She has a lot of anxiety issues right not we need to deal with.
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"Thanks for this!" says:
LoriZ (07-22-2012), SaraMichellee.(: (07-29-2012)