Hi Lily,

I was wondering if you could email, send letters, call or somehow contact any specialists with a detailed break down of your symptoms, tests and history - and ask if they will take your case on. You might find a Dr that will be up for the challenge to help you.

I can imagine how frustrating it can be to not be taken seriously by the Drs and to have "friends" seem to disappear when you most need them.
Is there anyone that you can ask for a bit of help at this time?
Family, friend, neighbor?

Check back here and let us know how you are OK?