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Originally Posted by BackwardPawn
Sorry I'm replying so late. I've been at a family reunion all day, so hopefully you get this before your appointment tomorrow.
My neuro was actually not sure which to put me on as she has patients on both and hasn't come to a consensus as to which works better (she specializes in MG, and a few other neuromuscular problems, if you live on the east coast, I can get you her name--she said she has patients that come from as far away as Porto Rico).
There's a pathologist who runs the apheresis lab whose taken an interest in my case. I think he was pulling for the Cellcept due to a promising study he read, so she decided to go with that one.
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Becky,
Just curious, did the thymectomy help either of the diseases? They're expecting it to help the MG, but my doctor said she's curious to see whether it helps the SPS. She said she found a few case studies where it helped, but doesn't know if those are the only people they've tried it in or if those are just the ones it helped. Thanks.
Jeff