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Old 07-23-2012, 02:17 AM
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
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SCS runs at least 50k for the operation. Plus, he has a 30 day inpatient program. Plus, whatever fees are charged over the lifetime of a patient.

I went to him, seeking a specific treatment. I had the cash ready to pay for a series of treatments. (I was willing to spend 10k or more out of pocket.) And it's been long enough where I can't remember the exact number he quoted, but it was in the tens of thousands and well beyond my option unless I settled out my case. (Something I considered.)

I also asked how many of his patients with RSD, that have had a SCS, has it caused spread. His claim? Zero. This is just dishonest.

Prior to meeting with Praeger, his resident warned me not to be offended by him and his ego...

He belittled something my doc had recommended, (actually laughed and was very condescending) and although my doc was unknown in the field, it turned out that he was not only correct, (verified by Carden) but that the research was several years old and verifiable online.

While I agree it is important to be aggressive asap when dealing with RSD, you also need to find a doc you can trust, and YOU must do your own homework. SCS does work well for some, but it can be a nightmare as well. Learn to use the search button here on NT, as well as some of the other respected RSD sites found in the stickies on this forum. Start with "Praeger" and you will see that he leaves a trail of unhappy patients...

I've had RSD 10+ years. My care has been well managed for several years, so that I'm working towards the goal of remission, or a continuing of lowering the effects of the disorder. I have had multiple brushes with developing spread, and have figured out what works for me to keep it from happening. (Steroids, Lidoderm, massage, warm water with Epsom Salts, an increase of meds when responding to a fresh injury.) I'm unwilling to undergo an invasive treatment like SCS at this point.

If I were in your shoes, I'd probably see what Praeger has to say. It doesn't seem you even have a clear diagnosis at this point. If you're not happy with him, I'd fly into San Diego and consult Dr. Sajben.
http://painsandiego.com/

An appointment in August is not so very far away, btw. You can often get in earlier by calling to fill someone's cancelled appointment. In the meantime, start reading--there's a sea of important info about RSD available. Starting with how diet can effect RSD http://www.rsdrx.com/four_f%27s_diet.htm

Check out HBOT. Research Ketamine. Start swimming in warm water asap.
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