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Old 07-23-2012, 04:20 PM
WayneR WayneR is offline
New Member
 
Join Date: Jul 2012
Location: Upstate New York
Posts: 5
10 yr Member
WayneR WayneR is offline
New Member
 
Join Date: Jul 2012
Location: Upstate New York
Posts: 5
10 yr Member
Default Small Fiber Ganglionopathy (Neuronopathy)

I am a 64 year old male and I am new here. In January of 2011 I started having burning around my trunk at the level of my navel. Over the next two months the burning involved my entire trunk and began moving down my legs and arms. A skin biopsy confirmed the dying back of small nerve fibers. After another month the burning covered my entire body including my scalp, face and tongue. I also experience disturbances to my sense of taste and smell. The biopsy and the involvement of my trunk and face confirmed the diagnosis of Small Fiber Ganglionopathy (Neuronopathy). The tricyclic Desipramine is providing significant relief from the worst symptoms but this Neuronopathy has dramatically affected my life.
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