RESOURCES AND LINKS
I thought it might be helpful to start a list of links for resource or research for you to have available. Because I compiled this list more than a year ago, there may be some inactive links. Please let me know if you find one so I can remove it.
Cherie
http://www.medmarketplace.com/index.asp. New and used medical equipment.
www.CLAMS.org stands for Computer Literate Advocates for MS and this site provides excellent search resources on topics related to MS that come from reputable MS sources.
http://www.mult-sclerosis.org provides a search engine for topics related to all areas of MS care and treatment. There is also a medical encyclopedia and drug reference guide available along with many other features.
http://www.fda.gov Provides a link to the FDA's database of safety, interactions, reporting protocols. It also offers a dietary supplement listing with warnings of interactions and safety. You may research most currently used medications on this site for product information.
www.healthtalk.com has webcasts for patient education and listing of articles pertinent to treatment, symptom management and wellness.
MS Organizations
Multiple Sclerosis: Articles by a Physician with MS (Highly extensive MS information and archives. Be sure especially to check out the "library.")
http://www.ms-doctors.org/gmarone.shtml
Multiple Sclerosis Foundation (Includes an "Ask an MS Doc" forum as well as a general MS discussion forum. The "Ask an MS Doc" forum includes extensive archives of questions and answers. Includes help with finding an MS specialist.)
http://www.msfacts.org/
Multiple Sclerosis Online Information and Support (Books and information on living with MS. Includes financial aid information.)
http://www.msworld.org/
National Multiple Sclerosis Society - index (Extensive MS information and archives. Includes help with finding an MS specialist.)
http://www.nationalmssociety.org/
MS Society of Australia - MS information
http://www.msaustralia.org.au/msinformation/index.htm
General MS Information
About Search - Find it now! (MS Information) (A great search resource for MS information. It often turns up articles you wouldn't find other places.)
http://search.about.com/fullsearch.h...le%20sclerosis
MEDLINEplus: Multiple Sclerosis (One of the top research resources for medical professionals. Requires a membership; however, membership is free and open to all)
http://www.nlm.nih.gov/medlineplus/m...sclerosis.html
Multiple Sclerosis Education and Medical Information from the Experts (An extensive MS website that includes interviews with various MS experts. They also sponsor live chats where you can ask various experts questions.)
http://www.healthtalk.com/msen/index.html
Multiple Sclerosis Glossary: Index (Alphabetic reference guide for MS-related medical terminology.)
http://www.geocities.com/HotSprings/3468/gloss.html
MS-Network.com (Extensive links to MS articles and news.)
http://www.ms-network.com/newsflash/...?currentPage=1
Multiple Sclerosis Only-Q&A (Questions and answers about MS from leading neurologists.)
http://www.msonly.org/library/qa/qa.html
"Multiple Sclerosis: The Facts" (An in-depth explanation regarding the process of demylination. It includes many links to other abstracts and articles with more information.)
http://www.albany.net/~tjc/19-01.html
MS University (A really great resource. At this website you can go through a tutorial and get a "degree" in MS. It's free too.)
http://www.msuniversity.com/classes/...search+Classes
News - TopAbstracts in Multiple Sclerosis 07/17/2003
http://www.docguide.com/news/content...5DAFA4&abd=yes
Wayne University--MS (Basic information on understanding MS. Includes pictures and illustrations about demylination.)
http://sun.science.wayne.edu/~bio340...kovska/ms.html
Welcome to MSWatch (Includes an "Ask an Expert" forum, message boards, discussion boards, research resources, and MS University.)
http://www.mswatch.com/MSWatch/home/community.asp?
[B]Information on Specific MS Symptoms [/B
Auditory Dysfunction and Multiple Sclerosis (Auditory Dysfunction and Multiple Sclerosis: A Silent Concern -- According to this article, auditory problems are not so rare with MS.)
http://www.vard.org/va/99/HEARING.HTM
MS Symptoms (A basic listing and description of MS symptoms.)
http://www.medsupport.org/ms/mssymptoms.htm
MS Tremor (Basic information on tremor.)
http://www.msnet.org/symptoms/tremor.htm
Pain in MS--Department of Veterans Affairs
http://www.vard.org/jour/02/39/2/pdf/kerns.pdf
The Pain of Irresponsible Pain Management (Medscape article, "...In a turnaround of events, hospitals and physicians are now facing increased legal accountability for inadequate pain management. In 2001 a California court held that the lack of proper pain management violates the state's elder abuse law. This state court decision is important in that punitive damages were awarded to the family under the elder abuse statute but would not have been available in a common law finding of medical negligence...."
http://www.medscape.com/viewarticle/458964?mpid=17232
Respiratory Dysfunction In Multiple Sclerosis (Abstracts dealing with respiratory dysfunction in MS.)
http://www.albany.net/~tjc/breathing.html
Tremor In Multiple Sclerosis (Abstracts dealing with tremor in multiple sclerosis.)
http://www.albany.net/~tjc/tremor.html
WE MOVE - Spasticity Bibliography (Extensive professional information resource on spasticity.)
http://www.wemove.org/spa_msbib.html
MS Diagnosis
Brain -- Abstracts: Filippi et al. 121 (10): 2011 (A multi-centre longitudinal study comparing the sensitivity of monthly MRI after standard and triple dose gadolinium-DTPA for monitoring disease activity in multiple sclerosis. Implications for phase II clinical trials.)
http://brain.oupjournals.org/cgi/con...ct/121/10/2011
Diagnostic Criteria for Multiple Sclerosis - multiple sclerosis encyclopaedia
http://www.mult-sclerosis.org/DiagnosticCriteria.html
Multiple Sclerosis Center - Practice Guidelines (Diagnostic guidelines for MS. Written for physicians. Extensive information on the differential diagnosis of MS.)
http://server3.mgh.harvard.edu/cndsi...info/practice/
Multiple Sclerosis - NeuroHaven (Basic information on the diagnostic criteria, diagnostic process and treatment of MS. Includes a picture of an MRI image showing MS lesions.)
http://www.neurohaven.com/ms1.htm
MS Forums
MSWorld Forums - General Questions and Answers about Multiple Sclerosis (MS message board by MS World)
http://www.msworldboards.org/vbulletin/
MRI Information
Howstuffworks "How MRI Works" (From the How Stuff Works website. In depth information on MRI.)
http://www.howstuffworks.com/mri.htm
MRI (Extensive information on imaging technology for professionals.)
http://www.spectroscopynow.com/Spy/b...ies--0,00.html
MS Specialists
BestDoctors.com: Multiple Sclerosis: What Is The Chance Of Multiple Sclerosis (Q & A about MS by an MS specialist. Extensive doctor listings.)
http://www.bestdoctors.com/en/askado..._011700_q4.htm
CLAMS Good Docs (A listing of MS specialists in the US. This is not a complete listing, but it is still fairly extensive.)
http://clams.org/goodocs.html
http://www.msneuroratings.com
http://www.multiplesclerosis.com/
Website with encyclopedia, current articles, online chats, resources on research data.
http://www.direct-ms.org/articles/Vieth-VitD-Review
http://www.direct-ms.org/
Articles in pdf format on treatment options, diet and supplements that are indicated to help treat MS symptoms.
http://www.mult-sclerosis.org/Visual...dResponse.html
http://www.direct-ms.org/
Encyclopedia of MS Terms and definitions
http://www.veritasmedicine.com/trial...pg=1&cid=72576
http://www.veritasmedicine.com/
Clinical trials for MS info
http://www.abstracts-on-line.com/abs...um=0%2E2107769 http://www.abstracts-on-line.com/
American Association of Neurologists Abstracts on research articles
Cooling products:
www.steelevest.com www.heatreliefdepot.com www.msaa.com (cooling program)
www.msfocus.org (patient services)
Learn how to care for your wheel chair, scooter or powerchair.
www.wheelchairmedic.com
www.peakwheelchairs.com
The following link is sponsored by the Multiple Sclerosis Foundation and is fairly comprehensive about clinical trials at all levels throughout the USA.
www.centerwatch.com/ctrc/MSFocus/index.html