Just had my 6th treatment today and the dose has increased to the point the infusion nurses are surprised at the amount I am receiving. So far, the only side affects I have are nausea for about 3 days and medication takes care of that. The benefits have been that I am completely off Cellcept (after taking 3,000 mg/day for 12 years), my prednison is down to 7 mg/day (headed slowly to zero) and my mestinon usage is down to 1 or 2 pills a day (from 6/day). So far, the benefits have far outweighted the side affects. FYI, I am also stretching my IVIG from every 2 weeks to 3 weeks.

Aside from the mediation reduction, I am feeling better also. I have more energy overall and everyone says my face is more alive and mobile.

Doc is not sure if we will do another treatment in 4 weeks, but I have an appointment for a checkup anyway. The original study did 6 treatments monthly, then bi-monthly for 6 more months. Just have to wait and see what happens.

So far, so good!