Thread: Tysabri Check In, Support and Information Part Three
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Old 07-26-2012, 04:06 AM
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Riverwild Riverwild is offline
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Join Date: May 2007
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Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Quote:
Originally Posted by Grammie 2 3 View Post
Hi all !
Thurs was #70-no headache this time I am this VERY HAPPY CAMPER
A ms neuro at Georgetown U did a trial on getting infused 8 weeks not 4. He said everyone on Ty after 2 years should go to 8 wks whether jcv+ or -. I am going to check with my neuro in Aug-he's already told me every 4 but, now this new info ...I'll see what he says now ??
Linda
I thought about going to an 8 wk. schedule back when my insurance changed, but I am afraid of breakthrough relapses!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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"Thanks for this!" says:
Natalie8 (07-28-2012)