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Old 07-27-2012, 10:33 AM
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Dejibo Dejibo is offline
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Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
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hello and welcome!

Breathe, just breathe. Please know that some MS patients can have dozens and dozens of lesion and no symptoms. others can have 3 lesions and be severely disabled. So, how many lesions you have shouldnt make you panic, where the lesions land is what you want to know.

Please know that there are more than 100 diseases that can mimic MS including lesions in the brain. Lyme, Lupus, Ebstein Barr, Sjoghrens, Devics, porphyrria...it goes on and on. The MD will start with the easy stuff that can be shown in blood work. vitamin def, ANA (arthritis titer) Lyme, Lupus...This will take care of a great number of possibilities B12 being off can do this to you as well as migraine syndrome, drug abuse and other exposures to chemicals and or pesticides. High lead, high mercury...the list is a long one. Trust that the MD will be working hard to rule out as many as he can in a simple blood test. Then if all that comes back normalish, we move onto the MRI.

Some MRI machines are not as strong as others (open ones are less powerful) and some closed ones are only as strong as the open one. Most today are 1.5 telsa strength, but there are companies out there using 3.o machines. If I took a pic of you on an open MRI and then used a 3.o machine it would look like two different patients. They take the imagines and look at where they are laying, and if you are having any symptoms. Some folks (Jack Osborne) have no idea till they wake up blind because a lesion attacked their optic nerve. Others only have fatigue and periods of being off balance. Having MS is like having a fingerprint. Yours will not be the same as mine. Sandra may have balance issues, and Jane may have blindness, while Connie has cognitive issues and Missy is extremely fatigued. So, please dont allow others to compare their disease to yours. If you dont have this or that, it doesnt mean a thing.

Can you make it to an MS center? They have ones located around the USA. Go to MS.org and look up one near you. Many of us go only to get diagnosed and then use a local neuro to handle our care.

Im sorry you found yourself on this long road. its not one that will go quickly and be filled with definite answers. You will hear a lot of maybes and could bes in sentences headed at you.

Hang in there.
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"Thanks for this!" says:
bowdowntobri (07-27-2012), yeti (07-27-2012)