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Magnate
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Join Date: Sep 2006
Location: Salem, VA
Posts: 2,195
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Magnate
Join Date: Sep 2006
Location: Salem, VA
Posts: 2,195
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Quote:
Originally Posted by SallyC
Hi again Mair, it so nice to have you back. I hate the circumstances that bring you back, but you belong here, among friends who understand.
I sure hope your new Neuro will be a bit more thoughty than the jerko before.  I hate it when they start playing the guessing game after you've already been DXed. 
Sorry about the TY, was it helping you? If it was I'd maybe try to get back on it. Check into the TY thread...there are some who tested positive for JV and are still doing well on TY. Just watching closely.
BTW, have you been tested for PML? Not to scare, but caught early is better.
Stay with us. We are all here for each other.  |
No Sally, I haven't been tested for PML, just the virus. I'm going to try my best to get back on Tysabri. I took it for over a year, and had a port put in because they could no longer access my veins. I've gone every eight weeks since being taken off TY for a port flush.
I'm going to do my best. If the next neurologist is as wishy-washy about the MS, then I'll go back to my PCP and ask him to refer me to someone at Duke. Anyway, that's the plan.
Yes, the TY was helping me.
I plan on writing Dr. Sherman a letter telling him it wasn't right to send my records to Dr. Burch and then refuse to see me anymore. It makes me so angry!
Anyway, it's so nice to see all of you again. I feel like I've come home!
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Mair
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