I hope Im posting a thank you to all that answered me. Not too familiar with the site yet, thought I wrote a thank you, but havent seen it show up. Anyway, if this does post, thanks tom all, sure you will more from me.
Hope I can be helpful also someday for someone.
Thanks
FredH
Quote:
Hi Fred,
Good question. At your age, and given the fact that you respond so well to mestinon, I think I'd be very hesitant to mess with things right now! However, if you decide you want a chance (and it's a pretty small one) of being "pill free" some day, I'd definitely look into a video assisted thorascopic thymectomy (VATT) or some other minimally invasive one. I know a man who had it done at age 69 and did OK.
Also, if you are seronegative or MuSK positive, the chances of having relief of symptoms from thymectomy are not really good at all. Only those who are ACHR positive seem to get that benefit.
Good luck making your decision. Surgery becomes a little more of a "big deal" with every passing decade, so take your time!
|
Quote:
Originally Posted by FREDH
 wHAT WOULD SOME OF YOU MORE EXPERIENCED FOLKS SAY ABOUT A THYECTOMTY OR NOT. DIAGNOSED WITH MG ABOUT 2 MOS AGO. HAD SYMTOMS OF DROOPY EYELIDS, SOME SPEECH PROBLEMS, CHEWING PROBLEMS, AND SOME SHOULDER WEAKNESS. MESTINON WORKED A MIRACLE FROM 1ST PILL ON. LAST WEEK HAD CT-SCAN, EVERYTHING NORMAL, I AM 74 YEARS OLD AND NOT MUCH IN FAVOR OF SURGERY.
WOULD BE INTERESTED IN YOUR OPINION. THANKS
FREDH |
Quote:
Originally Posted by pingpongman
I'm 72 and pretty sure it is NOT recommended for our age. Plus at our age everything I have read I would not recommend it.
Mike
|
Quote:
Originally Posted by FREDH
that was what i had read about it also. Now my count on antibodies was very high (over 500 ), however, i have read here that that high count is not necessary a symptom of a more servere case. Thanks so much fred |
Quote:
Originally Posted by FREDH
I feel the same way. I feel to good to do surgery at least if the mestinon continues to work thanks fred
|