Hi there, Im new here.

I have MG for over 3 years now. I want to ask of someone recognises this:
At home, I have times of severe weakness. Most of the time, I'm weak, when I did something it causes weakness. Breathingproblems, not being able to walk, weird speech and so on.

However, I never seem to have this degree of weakness on my appointments with my neurologist. I hate this, because this way I feel like I'm exaggerating. Like my neuro is not taking me seriously.
I do believe the reason,is because I get most of my weakness when I can relax. And at those appointments I have loads of adrenaline rushing through my body. the adrenaline is sort of getting me through it.

Does anyone can relate to this?

Doctor describes it as "well treated" but I disagree... But my muscle weakness isnt very prominent at the appointments so I get where he's coming from...
Anyway, I gave an usb with 2 short movies showing, trying to "convince" the doctor I do still have loads of weakness... Maybe you guys can also take a look and give your opinion: do i look mg weak?
I have the feeling Im not taken seriously.