I've had three courses of IVIg. The first was five days, and it made me better for a week or two, but that also may have been because I spent those five days in bed at the hospital. The second was also five days, at an infusion center, and I had an excellent response--it made me better for about six weeks. The third time, the doctor suggested we try three days, and it didn't help me at all. I'm doing really well on Imuran these days, but if I have a relapse I would try the IVIg again, but I would insist on the whole five-day course.

My first two SFEMGs came back "borderline" and "mildly abnormal." Then, on my insistence, the neuro who did them sent me to another neurologist, an hour and a half away, with a reputation for expertise in MG. He is also a neuro-ophthalmologist. He did a different kind of SFEMG. First, it was on my face (even though I have almost no eye symptoms). Second, it was a "stimulated" SFEMG, which means instead of asking me to slightly clench a muscle, he sent small painless pulses of electricity through the muscle via electrode stuck to my face. He thought the results were strongly indicative of MG, though he said he had seen hundreds of MG patients, and not one of them had my gait (at the time I was swaying from side to side from the waist up--for some reason I almost never do that any more). Anyway, my local neuro accepted the diagnosis and has been treating me for MG, with Imuran and occasional IVIg every since.

Abby