Thread: Weakness
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Old 07-30-2012, 08:56 AM
RavenC
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RavenC
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5 neurologist??? Wow!
It's great you've got the nerve.
It's hard for me to have a good feeling with any neurologist I guess.
Because of the fluctuation of my weakness.
I may have the weakness at home, but not when I'm there. So my weakness is not objectively identified at those moments. So they say: it's not that bad. Or: it's treated well.
So I go home, feeling whiny and misunderstood.

I've tried mtx and azathioprine. Am on prednison and cellcept (and mestinone of course) now. Can't reduce the prednison even a tini tiny bit, because it causes more weakness.
Prednison is so far the only stuff that's giving me less weakness. However, it is also the only medicine I have very overwhelming side effects of. Still, it's "good" for the disease so that's that.
Been to a second opinion (so that's my third neurologist, but only been there once): here was the same conclusion. Prednison = good for MG.
So I guess that's that. And I just don't want to be the annoying, constantly calling, complaining patient anymore.
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