Maybe it's because you "rest" before you see your neuro....

I've found that I have to schedule my appointments in the late afternoon - if I go first thing in the morning, I'm not tired enough for my symptoms to be noticeable.

And maybe you should take a walk around the block right before you see your neuro (or whatever it takes to "wear down" your muscles). Don't do anything that will land you in the ER, but enough to work the adrenaline edge off.

No matter how good a doctor may be, unless he/she actually HAS MG, there is no way they can fully appreciate how we feel. None of us could have understood it until we were the ones experiencing it ourselves - it's still hard for my family to understand, but they're getting better (of course, I'm getting slightly worse, so it's more visible).