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Old 07-30-2012, 06:43 PM
motorcycle diva motorcycle diva is offline
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Join Date: Jan 2011
Posts: 21
10 yr Member
motorcycle diva motorcycle diva is offline
Junior Member
 
Join Date: Jan 2011
Posts: 21
10 yr Member
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The stress your body experiences from pregnancy would surely make symptoms of MG exacerbate if it was present. Many of the early signs fit so many other sources, one can understand why it is difficult to provide a difinitive diagnosis early on. I was seen early in my quest for a diagnosis by a specialist at an eye institute and was told ptosis and double vision can have many causitive agents. I was dismissed with a press-on prism! LOL To this day, I have to smile when I think of that appointment. I had done my homework and I knew that if the double vision moves and effect both eyes at some time, you must consider MG and I had experienced dv in both eyes during that year. I too found myself with a diminished energy level and thought I needed some vitamins. I experienced the facial muscle fatigue, limb weakness, trunk weakness, excessive saliva, difficulty breathing, and speech slurring. I was a text book case by the time I found the MDA Clinic in OKC, OK. As well, the local MG support group was a huge help. They have a quarterly newletter that keeps it's members updated on the latest issues. If you have a chapter near you, I urge you to get in touch.

Quote:
Originally Posted by teresakoch View Post
FWIW, my neuro told me that by the time a person is "officially" diagnosed with MG, they have probably had it for MANY years - the symptoms come on so gradually, they are attributed to something else.

When I look back at pictures of me, I can actually see the eyelid droop starting back when I was pregnant with my first child - she's about to turn 26. It's not terribly pronounced, but it's definitely there.

And when I think back to all of the times that I was just too tired to do stuff - things that I (and others) attributed to "laziness" or "being out of shape" - I realize that the MG has been present all this time. It's a bit of a relief, actually.....

I think it is SO much harder when someone is diagnosed at such a young age; however, it is good that you have found out about it now - you can take steps to prevent serious damage to your body.

Allow yourself to REST - I know that's a hard thing to do when everyone else around you is so active. And allow yourself to get mad - it's an essential part of the grieving process. I hope that you are able to get answers very soon; then you can start addressing your health issues.
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