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Junior Member
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Join Date: May 2012
Location: WI
Posts: 80
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Junior Member
Join Date: May 2012
Location: WI
Posts: 80
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Hi Steph,
I feel your pain, I was admitted to the hospital last week with similar breathing problems, and was also treated like junk because I haven't been formally dx'd with mg.
From the perspective of the hospital staff, even though I respond to mestinon and have all the mg symptoms, they just wouldn't go there.
So therefore, they decided to check all these other things.... cardiac, pulmonary, etc etc.
Hindsight being 20/20, I know I did the right thing by going to the ER. The generalized weakness was getting worse and worse and it started affecting my breathing, creating shallow breathing and low oxygen in my blood.
The thing I'd have done differently is done my research ahead of time to find a hospital (in network for insurance) that has an inpatient neurology unit. That would have increased my chances of someone actually *considering* that this is MG and an MG treatment may help.
Feel better!
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37yo, clinically diagnosed MG Aug 2012
Started Mestinon June 2012
*mestinon my wonder drug!*
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