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Old 07-31-2012, 07:17 PM
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Brue Brue is offline
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Join Date: May 2012
Posts: 86
10 yr Member
Brue Brue is offline
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Brue's Avatar
 
Join Date: May 2012
Posts: 86
10 yr Member
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Quote:
Originally Posted by Sallysblooms View Post
Yes, my feet are doing great now. The supplements we all talk about and many more have helped. I got better MUCH faster after getting sugar and bad carbs out of the way. Without those things, the supplements helped faster.

I have POTS (Postural Orthostatic Tachycardia Syndrome from Autonomic Neuropathy) and PN and my supplement schedule this plan is for that, CFS and hormone imbalance.

I have really good doctors that know supplements so I do not have to guess on dosages and brands etc. I have a schedule of supplements three times a day. I get really thorough blood tests twice a year, have saliva testing too. Neurotransmitters, vitamins, the whole nine yards. Hormone testing has been very good too.

Bio identical compounded hormones have been important. Powdered Calcium and Magnesium also.

CoQ10 has been very good for my heart rate, bp, neuropathy, energy.

Supplements for the immune system Vit E, Liposomal Vit C, Astragalas, AHCC, Proboost Thymic Protein, Maitake D drops, Vit D drops.

Supplements to help the adrenal glands like Adrecor.

The methyl vits. B12, SAMe etc.

D-Ribose powder two times a day has been good for mitochondria/energy as CoQ10 and l carnitine are also. ATP under the tongue and Liposomal Glutathione is great!

l Carnetine (Carniclear) and Co Q10 have been important.

I take NAC and Resveratrol.

5HTP raised the Seratonin level so I could sleep and feel good again. It goes down like other things with stress and illness.

Alpha Lipoic Supreme and also the ALA MAX by Xymogen and Benfotiamine are healing my nervous system and helping the nerves in my feet. Has been great!

My multi vitamin is wonderful. Ultra Preventive X by Douglas Labs.

I add whey protein powder by Life Extension and First Greens to my smoothie each day. The smoothies are full of healthful foods. I am gluten free and have added lots more greens and colorful foods. I have been much more careful about sugar for my nerve healing also.

I take a good fish oil.

My Probiotic is a good one also.

My doctors are helping me to help the symptoms and support my body so I can continue to heal.
And if all that doesn't scare you, maybe this will! I have toxic neuropathy and just saw another neurologist and got the same song and dance, he said that supplements only play a minor role in my type of neuropathy and the long term answer was to take anywhere from 300-2700 mg of gabapentin (get to know this one). The dose was strictly dependent on the amount of pain I was in. I was taking more tramadol, but have since learned that it is frowned on my academic neuropathy community (my new doc also teaches) and that they 'don't do dope' in his office, inferring that tramadol was dope. Which I guess it is. He said if I wanted to save my liver, just gobble gabapentin forever. He said there's no way I'll ever get rid of it, and I'll be lucky to have it get much, if at all better. So good luck, and I mean that with all sincerity. You need to be more specific about what type of neuropathy you have as far as rememdies.

I DID HOWEVER, FIND SOME SHOES that were slightly bizarre, but worn by people who have leg and back problems, and spend the day on their feet -- it's called Z-COIL, and it's a TENNIS SHOE WITH A SPRING ON THE HEEL. A really big spring. It'll make you two inches taller, but lemme tell you, it takes A LOT of pressure off your feet, and you can walk a lot farther in them. Look it up. You won't regret it. I also got a pair of SANDALS WITH SPRINGS IN THE HEEL. Oh yeah. It works too.

Brue
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