Thread: Just wondering
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Old 08-01-2012, 12:34 PM
Debbie D's Avatar
Debbie D Debbie D is offline
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Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Debbie D Debbie D is offline
Elder
Debbie D's Avatar
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
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Welcome to NT...great place for info & hugs...

I started with a numb toe in '05. EMG showed nerve conduction wasn't great. MRI showed lesions but neuro said "not in the right place" for MS. He gave me migraine meds thinking it was that-even tho I never had a migraine.

Symptoms got worse...stumbling into walls, spasticity, bladder probs, cog fog. The neuro really didn't do much for me. He dropped my insurance, so then he sent me to an MS specialist. She looked over the MRI, noticed I had fibromyalgia, and declared that was the reason for the probs.

So about 5 months after that, my symptoms got worse. I found another neuron that was recommended by friends. He said "hmmm maybe MS but lesions aren't in right spot. We'll watch you."
A year later, my legs locked. "okay, probable MS". Put me on cop axone & monthly infusions of solumedrol-then let his nurse practitioner take my case. I was unhappy with her way of minimizing my symptoms. So someone on this forum recommended her neuro. He said that I have a benign case of MS, but watches me & treats the symptoms seriously. He is kind, spends lots of time with me during appointment, and I feel, for the most part, that I am in good hands.
I try to keep a symptom journal, eat right(most of the time), and exercise, including stretching. This disease can sneak up on you...so respect it, but try not to let the symptoms take over your life.
As others have posted in the past, there are many diseases that mimic MS. It's a matter of exclusion...
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Last edited by Debbie D; 08-01-2012 at 12:35 PM. Reason: Typo
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