Originally Posted by zebus

Well I ended up deciding to go for it, not like I had any other good options for the present.

Yea.. it wasn't good, I swear if anything went right in my life I'd faint. First off, there was a scheduling mistake. Out of state people are suppose to be scheduled differently so they get longer appointment times, and have time to do extensive testing in one day.

Well, I didn't get scheduled that way. Second of all I got scheduled to see a resident.. basically when I got there, I told the resident my symptoms, she is like brb.. comes back in a few minutes with the attending and he basically explains to me that something was seriously screwed up, not only did I not get scheduled for an out of state time slot, I got scheduled in their lowest level clinic (residents).

However, he tried to be compassionate about it, and he seemed very knowledgeable, he basically took over for the resident because of the circumstances, explained he would try to get all the testing in he could, prioritizing the stuff that had to be done at Johns Hopkins, and getting anything that could be done elsewhere done where I live.

The end results was I got another EMG/NCV, granted it was more thorough then my previous one (they said they only trust their own). I also got a lot of blood samples drawn, and was sent home with a full spine MRI prescription..

Probably none of this is going to directly help me from this visit alone, but I feel it was a step in the right direction. They assured me Johns Hopkins doesn't give up on you, and they'll get it figured out.

Overall the trip wasn't too big a deal, financially the flight and hotel were cheaper than I would of expected, the only bad deal is what I gotta go home to now lol,

My family thinks I'm crazy for going to the doctor, and think I'm making too big a deal out of this.
Doctors at home probably think I'm crazy cause no tests they've done have shown positive to back up my symptom complaints.
My last semester of school is starting up which means I'm going from sitting around (the only time I feel good anymore since this started), to working my *** off 8 hours a day and dealing with the issues this causes me in the process.

But yea I agree with the above, the problem with neurologist is they want to explain every symptom with a nerve problem and refuse to acknowledge anything else, which makes something like TOS that is both neurological and vascular very difficult. But maybe someone will make the leap eventually.