Hi Erika, welcome to the club. Much luck is wished to you, that LDN helps you as much as it has helped me and even more.. It's not a cure, but has helped me to feel better and stronger, for the last 10 years.

I agree, your Doc is not following protocol and you are wise to note that. My Pharma(Skips) uses Avicel as a filler, because Lactose was causing allergic reactions in some. Lactose is the orig filler recommended by Dr Bahari, but not all can take it. Just be sure it is a fast release filler!!

Don't expect too much and give the LDN at least 6mos to a year before giving up on it. I couldn't live without it, now that I know how it has kept my disease so stable for the 10 years I've been on it, after giving up on ABCRs.

It's simple to me how it works...I raises my Endorphines (Nature's pain killers and energy boosters) and I just feel better. At first, like everyone else, expected more and was disapointed that I wasn't cured. I did feel a bit stronger and healthier though, so I stuck with it. It has never failed me, IMHO!

Good luck!!!