Hi,
I have had RSD for 4 years now-shoulder, arms, hand and back, and I went through college with RSD and was able to get my doctor to write a note for accommodations (extended test time, scribe/note-taker, physical breaks during tests) . I happen to also be a public school teacher also : ). You might want to look into requesting a 504 plan for your daughter. You would need your doctor to write a note and find out what else is required by your school to get one, but generally if the doctor says it, in most cases the school has to provide it.
http://specialchildren.about.com/od/504s/f/504faq1.htm (link about what a 504 plan is)
It is possible that the school could have an extra set of textbooks for your daughter that would stay in each classroom and she would just use it when she is there and be able to have a set that would stay at home. There are probably other accommodations she would be eligible for that would make her life easier. Here is a brochure from the RSDSA, I recommend taking a look at and perhaps sharing with your daughter's school. It has suggests some accommodations the school can make specifically to help those with RSD
http://www.rsds.org/4/youth/Succeed_in_School.pdf
Hope this information helps! Feel free to PM me if needed.
Quote:
Originally Posted by ldyjane
Hello! My 14 year old daughter is starting high school soon and we are trying to find a way for her to carry her things. Her crps is in her shoulders arms and back. She has extreme limited range in both her arms and shoulders alon with decreased strength. A backpack or shoulder bag is out because of the sensitivity. She can't pull a rolling case because of the loss of range of motion. She can't straighten her arms enough. She calls herself a little t-Rex (little arms).
Any ideas would be greatly appreciated!
Thanks!
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