Originally Posted by KyMarie

Hello! I have CRPS in my leg/foot and also have some spasms, mine aren't nearly as bad as yours sound but I figured I'd give you some insight to the nerve blocks as we are somewhat close in age. I've been having lumbar sympathetic blocks done for the past several months on a monthly basis (minus one month as I didn't respond to one month's injections, I just found out the other day it was possible he missed as it's such a small area to get at). I get about 10-15% worth of relief from them. To me, that's a lot. The amount of relief varies from person to person however. What works for me, may not work for you. I get the blocks done every 3-4 weeks. Sometimes I get 2-3 weeks of relief, sometimes I only get 1 week of relief. There is some back pain from them and I do feel wiped out for about 24-48 hours after my injections. I sleep and sleep during that time, I find it's just better for me to do that. They sound worse than they are. It doesn't really hurt (if you can stand a nice deep IM injection or IV, it's a piece of cake) during the injections except I tend to get a little pressure in the pelvic region that by the time I gasp or move my head cuz it kinda hurts, it's going away and gone.

In terms of my spasms...there's nothing that stops mine...at random, I kick out or my leg goes flying into the air. Extremely painful. I've been on a variety of different muscle relaxers but nothing works for me. I can go a day or two without a twitch during my "alert" hours but I've been told when I sleep, my leg goes nuts nightly. Don't give up hope though. We are all different in what works and what doesn't work.

I wish you the best of luck in your treatments. It's not easy to have this disease but that's why there are groups like this. I've found a few support groups that without them, I doubt I'd be here today. I've been through hell and back so many times, I wonder where the strength comes from. Not just because of the disease either.