Quote:
Originally Posted by StephC
Good Morning
Still not confirmed Dx but after release from hospital last week (and only bcs I insisted they couldnt send me home with nothing) last wednesday/thursday I took one mestinon 60 mg each day and did get relief although short lived. I was told I have to wait for doctor appoint until 9/18. It is shocking to me that the doctors are making what is a horrible situation so much worse when they have power to help! Dont they take some sort of oath about helping people? but i digress. :-)
Anyway, on Friday/Sat/Sun/Mon I took 2 pills again definite relief but short lived plus I think all my emotional stress about health, not being functional, worried about not being able to work, losing my business, etc isnt helping.
Yesterday I took 3 pills evenly spaced throughout the day and wow, what a difference last night and today. Today is first time in about 6 weeks I felt I can work a little bit.
I had appointment with my pcp yesterday who tells me she wont give me anymore pills until dx confirmed but says neuro can diagnose by giving mestinon shot and if I respond then dx confirmed. Not sure why me telling her I am responding to pill is any different than giving me shot and me saying I feel better but since I had not heard/seen that option wondered if anyone here knows about dx via getting shot?
I cant possibly wait till September 18 so just trying to figure out what I can do in meantime.
As always, thanks for your time/insight and advice.
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I think doctors have become overly cautious about treating without a diagnosis due to malpractice lawsuits. I suppose this could be good from our perspective as we don't get medicine for ailments we may not have, but it does mean a frustrating wait. From the doctors perspective, it protects them. For example, I kinda think my doctor suspected I have Stiff Man even though she warned me its rare and likely to come back negative. She could have given me a dose of Valium to see, but instead two weeks for the test (I don't blame her--just frustrating to wait), on the other hand, my old neurologist suspected I have MG and didn't tell me surgeon because he hadn't run the tests yet. I almost died as a result. I probably had a malpractice lawsuit against him.
Anyway, just my thoughts on the subject.
EDIT: Plus insurance may want to see a diagnosis before paying for medicine.