Hi Jeff,

I take baclofen (20 mg X 3) for spasms, valium (10 mg X 3) for the stiffness, prednisone (15mg one day/5 mg next day) to keep my eyes from locking in place and having double vision, and imuran (50 mg X 3) to help control the prednisone effects. We are in the process of trying to reduce the prednisone to a maintenance level of 10 mg every other day. I know that I probably won't be able to completely be free from it but we are going to try slowly reducing the dosage. I know that some of my former post have not been clear on the dosages I take but I checked to make sure these figures are correct.

This combination has really seemed to work well although I still get stiff with too much outside stimuli and being cold. My X-neuro made the comment that he has seen patients take up to 80 mg of valium per day to control the stiffness which I can't imagine. I think he was just talking "Big" which is one of the reasons he's no longer my doctor. I really am reluntant to increase the valium because I can tell that it has had an effect on my thinking and remembering process. But I am thankful that it has helped with the stiffness and the other problems that I have experienced with SPS.

I hope this helps. As I've said the SPS really is my biggest problem and having the spasms and stiffness under control is so important.

Good luck,
Becky