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Originally Posted by catra121
I am very very sorry to hear this. I was hoping so badly that you would see some improvement by now. How many protocols have you tried? What has Dr. Fugedy said about your progress (or lack there of)? I really hope you find something that helps...
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Why is it that Deb and I both have had no progress? We are just so frustrated and disappointed in the whole process. We are on our third protocol I think and also using the TENs with the tDCS, but have had no change. Doc gave us this 3 weeks ago and funny thing is, we haven't heard from him either. We thought he'd stay in contact with us to determine if what we are doing is any help but no such luck. We have to always contact him. That contributes to frustration when sometimes you can't get him for a day or two. I'll try to reach him on Monday to see what other tricks might be up his sleeve. This is so weird to us since we also went to Texas to try a new treatment with Dr. Rhodes and so many people were being helped with his plan and nothing helped us with that treatment either. We must be the weirdest set of sufferers. I really want to stay with tDCS and don't want to give up and I know Deb feels the same way but it is getting very hard to have faith. I just rec'd an e-mail from Dr Rhodes with a you-tube video of a young girl with RSD who was totally helped with his treatment. She is an inspiration for his plan. Why not us???