Steff quoted:
I have dodged and twisted,accomodated each new change in my body,fought for strategies to manage every little change that is occurring now on a daily basis...and have just sort of "accepted" that THAT is how my life will continue with this disease.
But continuing my sentence...if I were to be sickeningly honest,look at PD in it`s rawest ,ugliest state...it is a disease that aims to catch you out,it tries to outwit you.Just when you think you`ve got a grip on managing yet another symptom,another loss of muscle control...when you think you`ve discovered a sleeping/resting/standing position that affords you a modicum of dignity,brief respite from pain,when you allow your guard to drop and deliver a hint of a smile that you`ve "cracked" it...this insidious worm venemously homes in on another piece of you,and works it`s destruction.
It is this facet of the disease,this "unknown" quantity...this unpredictability,this cycle of ; reallisation that today something feels more difficult than yesterday...then mentally accepting it...next comes the coping strategy...the trying out of various mechanisms until you hit on the right tool for the job..and then...the next day,starting the whole exhaustive process again.
Despite my burst of energy...despite my delight in re-visiting briefly,the things I could once do with ease,and kidding myself that somehow I might just dare to hope that THIS TIME...I won`t see my abilities to iron,cook blah blah blah...slip away yet again...but that I will,instead, remain permanently "able.". ..I know in my heart that PD is not a permanent,dependable state that you can ever be at ease with.


Albeit bleak, Staff, I would like to use your words when I make my next presentation. Well said!
Peg