Does he really think the nodule is causing the SOB? It doesn't sound like it's large enough to do so...to the level of your SOB.

If it was autoimmune related interstitial lung disease they would have been able to tell from CT scan and/or biopsy so good news it's not that.

I'm not sure why he says it's not treatable if he doesn't know what it is...and he has only tried one thing so far (Symbicort). What's his plan?

I hope your rheumy visit provides more answers. I would really encourage you to get the lip biopsy if the rheumy thinks it may be a possibility.