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The doctors and other trained staff who decided that you are disabled expect your health to improve.
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Your treating doctors?

This is what you are going to need to find out. What did
YOUR doctors say to SS about your disability future?
If I were you, I would have a nice chit chat w/the docs at your next appointments.
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How could they possibly believe that these problems are going to be any better 12 years from when i first went on ssdi?
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From medical documentations obtained by your treating physicians I gather.
As Gilbert already confirmed.........
"if you don't go to doctors on a regular basis social security will see this as a sign that your condition has improved and your ssdi benefits could stop.. "